HEEEEEYYYYY GUESS WHAT???!!!??!

Hey guys guess what i found out today? I found out my blog was chosen for a cancer and NF outlook page!!! Now tons of people are going to be looking at my blog everyday!!! But I owe a thanks to all of you who comment on my blog. I was chosen by how well people like my blog. Thank you guys!!! When i got the news i was super excited! Also my mom's blog got chosen!! Her and I looked at each other and we gave each other with hudge smiles on our faces. Hey guys geuss what else?? I have been trying to start my own book!! Called "A Child's Veiw into NF" I am doing the book because i was inspired by my own blog!! I am also making stuff for children in the hospitals (can't reveal it yet) and i need a favor from you guys, i need you all except stephanie to give me a dare to do before next month is over......ok stephanie you can too but.....nothing that involves the boys in my class >:O..........haha

HEEEEEEEEYYYYYYYY GUYS!!!!!

hey tomorrow at 3:30 i am going to get ready and get in the car then we are off!! I am so happy that make a wish did made my wish be so close!! I can't wait i promise i will try to keep all of you guys updated. Hey look up tower of terror videos on youtube I am going to go on it!!! Where do we stay you ask? Well we stay at the give kids the world villa of course! Whats there you are wondering? Well there's an ice cream shop, a gingerbread restaraunt and in there they serve breakfast and lunch, they even have a marry-go-round, they also have a building where you can make pillows. But to make the pillows you have to sing with elmo you sing "i don't wanna be chicken i don't wanna be a duck so i'll shake my butt!!"...............i was just laughing when i saw these videos. Ok well i will keep updating. Thanks for looking at my blog! Talk to you l8tr.

MY MAKE A WISH!!!!!!!!!!!

Hi everyone!!!!! Guess what?????? I got a make a wish!!!! I am so excited!! Guess what i chose. I chose Disney World. We are leaving on the 14th of november. And get back on the 20th of november. So when they called my mom they were surprized they called so early. They said we are sorry but Bailey's secound wish (back up wish) can not happen.............because............ we are doing her first wish!! they sure did trick my mom at first. 8) I am counting down the days. When we geet there, i am going to a party in the movie theater thats in the village for teens ONLY...its gonna be awesome.

My Make a Wish

Posted by Bailey's Mom :)

Update

SO I went to this NF clinic and it was cool.. THe docters knew all about Nf and talked to my mom about writing in the newletter that NF has here in Colorado.

MY tumor has not caused me problems but I itch alot and have a lot of headaches on my right side

I may go with my mom to Tennessee to participate in soemthing for NF reasearch. COOL

hey ya guys!!!!! :) :)

so today my grandma and uncle are coming over. I think it'll be fun but the downside is they had to get rid of their new doggy :( my uncle has NF1 just like us he had a troubled past of getting sick but it's all good now. I hope we will do fun stuff before they leave!!! My uncle has a tumor that makes his check sag down and look puffy i don't remember what it was called though. You know what would be fun?? IF YOU GUYS PLAYED WWW.WOOZWORLD.COM AND THEN TRIED TO LOOK FOR ME I AM BAILEY973 ON THE GAME AND IT IS SO MUCH FUN SEE YOU THERE

SURGEURY

i don't know what is going on with surgery but i do know that is has been off and on for a while. i'm not at all worried because i know that God will be there to protect me. anyway i''ll be having a MRI net Wednesday i am hoping all goes well i am actually wanting this thing out of my head i am thinking the sooner the better. i will be thinking of all of you guys. thanks for being there for me and thank you for being my friends i am so lucky to have you guys be there for me. thank you Christina thank you Stephannie thank you Michale Forbes you guys are so funny and make me feel so happy.and thank you to the person i can not live without my mom.iknow what ever happens as long as you are there everything will be alright. :)

CAMP!!!!!!

CAMP IS SO MUCH FUN THE FIRST DAY I WAS THERE WE WENT TO CHUCK-A RAMA IT WAS SO YUMMY I ATE UNTIL I ALMOST BURST AND THEN WE CAME TO OUR CABIN AND GOT READY TO GO TO THEIR SWIMMING POOL WHICH WAS SUPER WARM AND THAT'S WHERE I MET ELIZABETH GRAM SHE WAS FUN TO BE AROUND.THE FOOD THERE WAS NOT TO GOOD THERE WAS PEPPER SKIN IN THE EGGS AND THEY HAD VEGGIE LASAGNA WHICH WAS YUCKY AND IF YOU WERE ALLERGIC TO ANYTHING IN IT YOU WOULD HAVE TO EAT A SANDWICH THEY HARDLY HAD STUFF I ENJOYED BUT GOING PLACES WAS THE BEST PART I ALSO WENT TO RAGING WATER TWICE!!! AND I SAW MY DAD AT THE ZOO WHICH I LOVED TO SPEND TIME WITH HIM I CAN'T WAIT TO GO HOME WITH HIM FOR A WHILE.AFTER THE ZOO WE HAD A BARBIEQUE WHICH WAS THE BEST FOOD THEY HAD THE WHOLE TIME I WAS THERE.AND THEN I MET THIS DEAF GIRL AND SHE WAS AFRAID SHE WOULDN'T HAVE FRIENDS BUT IN THE END I BECAME HER VERY BEST FRIEND.

24th

on the 24th of this month i will be going to camp not just any camp NF camp and there is kids who already want to be my friends im so excited!!!!But one thing im not to excited for is going without my mom to camp and on the plane. But there will be a guy holding a sign that has my name on it and i follow him i wonder what happens after that? do i go into a limo?do i go into a stinky tub of a bus? what happens??!!im freaked out by this if you know anything please tell me in the comment box bellow. I could really use the help. thanks for being so kind to me.

cushings syndrome and NF

WHEN I WENT TO THE DOCTERS ON WEDDNESDAY I FOUND OUT THAT I DO NOT HAVE ANY SPINE TUMORS AT ALL BUT THEY DID SEE THAT MY BRAIN TUMOR GREW SINCE MY LAST MRI. ANYWAY WHEN WE GOT HOME MY MOM LOOKED THROUGH THE PAPERS AND FOUND OUT THAT I HAVE A SYNDROME CALLED CUSHINGS DESEISE IT'S WHERE WE HAVE A ROUN CHUBBY FACE,A HUNCHED BACK.AND SKINNY ARMS AND LEGS IM STILL TRYING TO FIND MORE ABOUT IT I'LL TELL YOU WHEN I DO. BBBBBBBBBBBBBBBBBBBBBBBBYYYYYYYYYYYEEEEEE

hey ya guys!!!!! :) :)

hi guys on the 25th i found out that i will be having surgeury in augest when i move so that im not so stressed out. they said that i would have to stay in the hospital for a week. they also said i'll go deaf in my right ear after the surgeury. im nervous i'll have to do this without my mom being there with me all the time like at night i wonder if she can be with me. well if you get any info please tell me, BYE!!!!!

THE 25th

SO I FOUND OUT THAT ON THE 25TH I WILL FIND OUT WHEN MY SURGEURY IS SO I KINDA HAVE BUTTERFLIES IN MY STOMACH SO IM NOT VERY SCARED BUT I AM VERY NERVOUS.BUT HEARING ABOUT THE KIDS WHO DO HAVE BRAIN SURGEURY MAKES ME FEEL SO MUCH BETTER ABOUT IT SO ALL I WANTED TO SAY WAS WISH ME LUCK CAUSE IT IS ONLY IN 3 DAYS SO WISH ME LUCK PLEASE!

SO WHAT?!!??!!

SO WHAT SURGEURY IS FINE, ANY TYPE OF NF IS FINE,AND MOST IMPORTANT YOU ARE FFFIIINNNEEE!!! WHO REALLY CARES IF WE HAVE NF IT DOESNT MATTER WE ARE THE SAME AS OTHER PEOPLE AND IF THEY DONT LIKE IT THEY CAN STICK THEIR NOSE IN A CATS BEHIND! EEEEWWW!! L.O.L :) SO WHAT DO YOU THINK SHOULD WE TAKE DOWN OPRAH? WELL ALL WE WOULD DO IS MAKE A VIDEO TELLING HER SHE IS WORNG!!! NF IS NOT THE ELEPHANT MAN DESEASE!!

nero

on Friday afternoon i had found out that i might not get the surgery i wanted i might have to have the one i feared of having the one where they cut open my skull when i heard this i went ballistic i couldn't stop crying. when i was told about this i was so scared. i was thinking, whst's going to happen to me, i was thinking will my mom at least visit me everyday, i was thinking about them taking off my skull, i was thinking what if something goes horribly wrong, i was thinking all these scary things then, today that feeling is gone i know that what ever happens it's because GOD wanted it to happen

my surgury

TWO DAYS AGO I FOUND OUT THAT THE TUMOR IN MY BRAIN CAN HAVE A MAJOR AFFECT ON ME AND THEY MIGHT HAVE TO DO SURGERY OR THEY'LL HAVE ME PUT THROUGH A DIFFERENT TYPE OF SURGERY WHICH IS TARGETING A LASER AT MY TUMOR AND SHRINKING IT UNTIL IT DIES AND BREAKS AWAY.THEY WILL HAVE TO KEEP ME OVERNIGHT (HOPE MY MOM IS THERE) STILL I CAN'T WAIT TO GET THIS DONE AND OVER WITH WALK'N DOWN DEATH ROW ISN'T SO HARD ANYMORE AS LONG AS SOMEONE YOU LOVE WHO IS THERE RIGHT BESIDE YOU

NEUROLOGISTS

HI EVERYONE TODAY I AM GOING TO THE NEUROLOGISTS AND THEY ARE GOING TO TALK TO ME ABOUT WHAT PROBLEMS THIS TUMOR MIGHT GIVE ME SO EVERYBODY WISH ME LUCK! BLOG YA LATER WITH THE RESULTS!!

MRI RESULTS

SO I JUST GOT MY RESULTS BACK AND I DO HAVE A GROWTH IN THE RIGHT SIDE OF MY BRAIN BUT, IT WILL NOT BE A PROBLEM NOW NOR EVER IT JUST GIVES ME A LEARNING DISABILITY AND HEADACHES SO I'M STILL GOING TO BE POSITIVE ESPECIALLY BECAUSE OF MY MOM AND DAD THEY ARE SO GOOD TO ME I FEEL LIKE I'M SUPER SPECIAL.

I'M SO LUCKY, THANKS MOM AND DAD, YOU GUYS ARE GREAT!!!!!!!!

HI GUYS!!!!!!!!!!!

Hi everyone we just barely got back from our trip and i wanted to tell you about the give kids the world villas. The give kids the world villas are for kids with NF or kids who are dieing. Thank God Rachel isn't dieing we are so thankful we got this trip and hope to help other kids in need. My mom is so awesome she takes care of us and now she'll be helping thousands of other kids, I think she is the best mom ever she rocks!!!

HELLO

HI EVERYONE I JUST WANT TO SAY THAT I'M GLAD TO HAVE ALL YOU GUYS ON MY SIDE. DID YOU HEAR THAT MY MOM WENT TO THE BANK AND EYE DOC AND EVERYONE WAS STARRING ST HER SHE THOUGHT THAT THEY NOTICED HER BUMPS BUT WHAT REALLY HAPPENED IS SHE AND BROOKLYN WERE HAVING A MARKER FIGHT AND MY MOM HAD A BIG PURPLE STREAK ON HER NOSE THE WHOLE TIME.

JUST GOES TO SHOW YOU THAT THINGS AREN'T ALWAYS WHAT THEY SEEM

KEEP SMILING!!!!!

MY MRI

Hi everyone today i am going in for my MRI 3/16/10 i'm not scared or nervous yet. there will be a video posted later today.wish me luck everyone.

I AM BAILEY HEAR ME ROAR........... ROAR!!!!!

POSTING COMMENTS

hello everyone, i just wanted you all to know that just because your age doesn't mean you can't post comments on my blog. And Simon, would you please keep posting comments. I love all of the comments being shown so please keep posting everyone please don't stop.

keep smiling

I LOVE MYSELF

I LOVE MYSELF WHEN SKY'S ARE DARK AND GRAY,

I LOVE MYSELF WHEN SCARY THINGS DON'T GO AWAY,

I LOVE MYSELF WHEN THINGS GET BAD,

I LOVE MYSELF AND I'M VERY, VERY GLAD!

P.S. THANK YOU, MOM! YOU MADE ALL MY DREAMS COME TRUE THROUGH THE DARKNESS AND SLEET AND THROUGH TOUGH TIMES YOU HAVE ALWAYS BEEN THERE FOR ME THANK YOU SOOOOOOOOO MUCH!!!!!!!!!!!!!!!!!!!!!!!!!!!

IT ALWAYS HELPS TO HAVE SOMEONE THERE TO GUIDE YOU AND TO TELL YOU WHERE YOU NEED TO GO I'M SO GLAD I HAVE MY MOM :)

hi it's me bailey

hello people i just wanted to say that you don't have to be silenced, let the world know you are different when the going gets tough the NFers get tougher

we are the NFers and nothing can silence us! we are different, you should be proud

MY MRI

Hello everyone, i was wondering if you could tell me more about MRI'S see i am going in for my first one ever on the 16th at 3:30 I feel nervous but I will not let fear stand in my way when it knocks at the door I don't answer it. when my mom told me about this i wasn't scared Ijust wanted to know more and was wondering if you guys could give me more info thanks

your pal

Bailey

I HAVE NF AND I DON'T CARE!!

hi guys sorry I haven't wrote to you in a long time I've been busy thanks for all the great comments you make me feel so much better. when I think about NF it seems like ok so I'm going to have some ups and downs on this , but that's life. A up would be the free trip to Disney world. A down i guess could be bumps but what's the big deal about that?

HI I'M RILEY

hi my name is riley and I don't have NF but my Mom;two sisters;and my big brother do.So that is why my little sister rachel got a make a wish.She wished to see princesses and we are going to Disney world.And my mom said we are blessed.A make a wish is a business that gives a child that has NF,cancer ext whatever they want.

Sometimes I get confused about what NF is.So I'm glad I have a mom that explains it to me.So I'm kind of scared when my mom goes on long trips to D.C. but I'm glad when she comes back and tells me all about it.

HI I'M BAILEY AND I HAVE NF1

Hi i'm Bailey i'm fourteen and i have NF one ,

at first i didn't know that I had NF but i soon found out that it doesn't mean you can't do the things normal kids can do, anyway i have three good friends who will not run from me even when i thought they would run when i told them i have NF they understood me and just stayed there by my side and at that point I knew i was special I knew i could do great things one day maybe even write a book like my mom

I know I'm special and i will never give up hope because I;m surrounded by people that love me recently my sister Rachel got a chance to be a make a wish kid and now we are going to Disney world on march22

in conclusion I AM BAILEY AND I HAVE NF ONE AND I'M PROUD!!