hi guys sorry I haven't wrote to you in a long time I've been busy thanks for all the great comments you make me feel so much better. when I think about NF it seems like ok so I'm going to have some ups and downs on this , but that's life. A up would be the free trip to Disney world. A down i guess could be bumps but what's the big deal about that?
SORRY FOR THE BAD TYPING AND PUNCTUATION (TO MOM) LOL
ReplyDeleteHoney, don't worry about any of that....I love you so much! You are so brave and wonderful, for putting your heart out her like this!
ReplyDeleteYou amaze and impress me.
you should be proud of yourself. I wish that there was more support out there was your age.
ReplyDeleteAWWWWWWWWWW YOUR SO AWESOME THANKS!
ReplyDeleteI was your age when I found out... I am 42 now and even though I have NF1... I went on to have a husband and three great kids..
ReplyDeleteYou are an awesome young lady and NF1 does not limit you or your dreams...just sometimes it side tracks them for a while!
email me teenmomx@comcast.net if you ever want to talk...
NF1 is not fun... but there is worse things in this world. Stay positive!!!!
Hey Bailey! I Think I heard you were having an MRI tomorrow? I hate to plug my own blog, and I'm sorry for doing so, but here is a post I wrote about my last MRI experiance.
ReplyDeleteThe only advice I can give you is maybe bring some music you like, or (this is silly) replay your favorite movies in your head. Or think of new blog entries!
http://jennihasgoneoutofhermind.blogspot.com/2009/03/just-another-day-stuck-in-tube.html