Sunday, June 26, 2011

Meet my TUMORS!!!!

This is the tumor that I am getting chemotherapy for. It is located on my corpus callorum and Drs. are saying that even a biopsy would be dangerous for me. The chemo I was on didn't work, so now I will go on a different chemo and we will recheck this tumor in 3 months.
Drs say this tumor was barely seen in August 2010. Then in March 2011, it was about the size of an M&M....then i was rescanned in June 2011 and it has almost doubled!!! Even while I was spending all that time doing chemo!

This is another tumor called a Aucustic Neuroma. Drs are worried about this one, but not as much as the other one. For this tumor I just get hearing checks every 3 months. So far so good.

Wednesday, June 22, 2011


Today started out when my mom woke me up at 5:25 AM. I was very tired and was constintly tripping over myself. My mom brought into the car some cinimon rolls, (which are not my favorite breakfast) I was very thankful for the sweet, sticky, bread roll. Alltough I didn't eat it all. The whole day was going from one doctor to the next. First I went to get a MRI (that takes very good pictures of my insides, but I hate how loud it was) I got to watch "Pirates of The Carribean" during my MRI. The worst part was when they stuck me with needles THREE different times! Two (one on each elbow) and one that finaly worked (in my hand). After that I went to get a hearing test (I HATE the pressure test) I did pretty goood though on that test. Next stop was my chemo. I get on my numming cream (as I call it) and wait to be called in. As they got to the last part of chemo they came up with my MRI scan results. Unfortunatly, I failed this see.. my brain tumor actually grew! This was not good news for me. My mom starts crying and then I realized how serious it was. The ride home was a quiet one. But I did get a of my most favorite frozen drinks. when I got home my parents went to talk about what happened. I fell asleep when I was supposed to be babysitting...I don't think they were too happy about that. Finally, later on in our day I felt well enough to go swimming. I loge the feel of cold water on my face that was burning in the sun. After that we ate dinner, got washed up, and took a well deserved rest
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Wednesday, June 15, 2011


So last night I went to this thing near the children's hospital with my friend Mujda.

It was ALOT of fun.First we went to get hair and make up done. Then we had to wait till six (we got done at four). While the chemo prom was going 0on they had food and music. I'm not a dancer so i just stood there. Ever hear of the show "DC cupcakes"? Well they gave us some of their cupcakes. They were not as good as they looked though. OVERALL it was a very fun night.

Monday, June 6, 2011


I get to go to two different camps this summer in July. I am very excited! I get to be with all my friends that i have missed sooooooooo much!!! I get to go somewhere everyday. Not sure of the age ranges, but it is a great camp (camp kostopolus) if you guys want, you can look it up and if you have kids maybe think about letting them go. I think it is a great opportunity for kids to meet other kids and have a great time.

----------> website for camo K..---------> htttp://

Wednesday, June 1, 2011


Im off chemo for two weeks now :D! I really got tired of it, I am very happy I get time off. I'm loosing hair and weight cuz of the chemo. I'm also loosing my apppetite but i try not to let it get the best of me. I pull through every day and try to keep a good attitude.