Meeting With Dr. Handler

So Mom and I met with my Neurosurgeon to talk about my tumors and if surgery was the best thing.  Turns out....It's not the best thing.  I felt sort of relieved when I heard this...But then I was like.."Then what are we going to do?"  More waiting is what we are going to do.

Im ok with waiting.  It doesnt mean that I have to do nothing.  I'll just take things as they come and keep a positive attitude and have FUN!

Nov MRI

DEGENERATIVE DISK DISEASE

i dont know much about DEGENERATIVE DISK DISEASE but i do know that it hurts. It hurts everyday from the moment i wake up to the moment i go to sleep.
its something wrong with my back that makes the cushy parts in between each bone on my spine start to dissapear...so my bones are basically touching..
school is going alright though everything is pretty easy except for math. its just new stuff to me, its hard to get used to. Drama class is my favorite though. well i have run out of things to say. goodbye for now

CAMP WAPIYAPI

camp was alot of fun!
i got to help all the other campers have fun. The water fight we had was one of my favorite parts.....near the end of it a big fire truck pulled up and the firefighter took out his hose and started squirting everyone!
another favorite part was when i went to a lake and sat on a rock....i was minding my own buisness when three chipmunks came up to me. so i fed them and thats when they started jumping on my lap trying to grab the food out of my hands....one even went inside my backpack!
i made alot of paintings at camp to raise money. one of them is in the camp art auction.
i cant wait to hear how much someone bid on it!

BAD NEWS....

so we found out chemo isnt working! im just mad that they are making me wait 3 more months till they do anything about it....what do i do in the mean time? well of course i worry ALOT.
i hate it when docs come in and say "oh the tumor grew" like its no big deal to them at all.
im going to camp waypiapi soon....im excited for that :)

NEW STUFF!!

so i started this new chemotherapy called afinitor.

the reactions to it are: dizzy all the time!, nausea, runny nose, i can get itchy too (i've read this on the package....lol)

OH AND SOMETHING GREAT HAS HAPPENED! i got a boyfriend! :D

this guy though is everything i have ever wanted from a guy. hes caring, hes kind, he loves me for me....this guy isn't judgmental at all, this guy always talks to me before he says or does anything,

this guy is the most wonderful thing thats ever happened to me,this guy is my best friend, and his guy is also......my boyfriend!

<3 u forever John Meister

MORE CHEMO???????

I went to the hospital on Monday and then on Tuesday. I was SUPER dizzy and just didn't feel right. So I was hooked up to IV to get fluid and they took a lot of blood. I always hate that part.

The tests on Tuesday were exhausting!

I had my eyes checked, hearing checked, hormones checked...SOOOO many doctors!

Dr. Rush came in and talked about taking out my port. The stinkin port doesn't work anyways, so I was happy about that part...I wasn't happy to hear that I NOW have to do MORE CHEMO!

Since my tumor hasn't shrunk, I will be taking an chemo that comes in a pill. Im glad I wont have to be poked every single time, but MORE CHEMO???? :(

I know that doing chemo is what I have to do, even if it stinks. I will do whatever it takes to show this NF who is BOSS!

Life's Tough...But You Have To Prove That You're Tougher!