Friday, March 2, 2012


I went to the hospital on Monday and then on Tuesday. I was SUPER dizzy and just didn't feel right. So I was hooked up to IV to get fluid and they took a lot of blood. I always hate that part.
The tests on Tuesday were exhausting!

I had my eyes checked, hearing checked, hormones checked...SOOOO many doctors!

Dr. Rush came in and talked about taking out my port. The stinkin port doesn't work anyways, so I was happy about that part...I wasn't happy to hear that I NOW have to do MORE CHEMO!

Since my tumor hasn't shrunk, I will be taking an chemo that comes in a pill. Im glad I wont have to be poked every single time, but MORE CHEMO???? :(

I know that doing chemo is what I have to do, even if it stinks. I will do whatever it takes to show this NF who is BOSS!

Life's Tough...But You Have To Prove That You're Tougher!


  1. Well done sweetie. You are one tough kid. When my neice Kira is old enough to understand her NF- reading stuff you have written will help her. You are a good advocate for healthy NF survivors. Hang in there sweetie, renee Chadwick- Melvin

  2. I'm so proud of you, Boo. You are an inspiration to so many people. You are tougher. I love you, Dad

  3. You are strong! My prayers be with you.

  4. You go, girl! (A friend of your mom's)