SURGEURY

i don't know what is going on with surgery but i do know that is has been off and on for a while. i'm not at all worried because i know that God will be there to protect me. anyway i''ll be having a MRI net Wednesday i am hoping all goes well i am actually wanting this thing out of my head i am thinking the sooner the better. i will be thinking of all of you guys. thanks for being there for me and thank you for being my friends i am so lucky to have you guys be there for me. thank you Christina thank you Stephannie thank you Michale Forbes you guys are so funny and make me feel so happy.and thank you to the person i can not live without my mom.iknow what ever happens as long as you are there everything will be alright. :)

CAMP!!!!!!

CAMP IS SO MUCH FUN THE FIRST DAY I WAS THERE WE WENT TO CHUCK-A RAMA IT WAS SO YUMMY I ATE UNTIL I ALMOST BURST AND THEN WE CAME TO OUR CABIN AND GOT READY TO GO TO THEIR SWIMMING POOL WHICH WAS SUPER WARM AND THAT'S WHERE I MET ELIZABETH GRAM SHE WAS FUN TO BE AROUND.THE FOOD THERE WAS NOT TO GOOD THERE WAS PEPPER SKIN IN THE EGGS AND THEY HAD VEGGIE LASAGNA WHICH WAS YUCKY AND IF YOU WERE ALLERGIC TO ANYTHING IN IT YOU WOULD HAVE TO EAT A SANDWICH THEY HARDLY HAD STUFF I ENJOYED BUT GOING PLACES WAS THE BEST PART I ALSO WENT TO RAGING WATER TWICE!!! AND I SAW MY DAD AT THE ZOO WHICH I LOVED TO SPEND TIME WITH HIM I CAN'T WAIT TO GO HOME WITH HIM FOR A WHILE.AFTER THE ZOO WE HAD A BARBIEQUE WHICH WAS THE BEST FOOD THEY HAD THE WHOLE TIME I WAS THERE.AND THEN I MET THIS DEAF GIRL AND SHE WAS AFRAID SHE WOULDN'T HAVE FRIENDS BUT IN THE END I BECAME HER VERY BEST FRIEND.

24th

on the 24th of this month i will be going to camp not just any camp NF camp and there is kids who already want to be my friends im so excited!!!!But one thing im not to excited for is going without my mom to camp and on the plane. But there will be a guy holding a sign that has my name on it and i follow him i wonder what happens after that? do i go into a limo?do i go into a stinky tub of a bus? what happens??!!im freaked out by this if you know anything please tell me in the comment box bellow. I could really use the help. thanks for being so kind to me.

cushings syndrome and NF

WHEN I WENT TO THE DOCTERS ON WEDDNESDAY I FOUND OUT THAT I DO NOT HAVE ANY SPINE TUMORS AT ALL BUT THEY DID SEE THAT MY BRAIN TUMOR GREW SINCE MY LAST MRI. ANYWAY WHEN WE GOT HOME MY MOM LOOKED THROUGH THE PAPERS AND FOUND OUT THAT I HAVE A SYNDROME CALLED CUSHINGS DESEISE IT'S WHERE WE HAVE A ROUN CHUBBY FACE,A HUNCHED BACK.AND SKINNY ARMS AND LEGS IM STILL TRYING TO FIND MORE ABOUT IT I'LL TELL YOU WHEN I DO. BBBBBBBBBBBBBBBBBBBBBBBBYYYYYYYYYYYEEEEEE

hey ya guys!!!!! :) :)

hi guys on the 25th i found out that i will be having surgeury in augest when i move so that im not so stressed out. they said that i would have to stay in the hospital for a week. they also said i'll go deaf in my right ear after the surgeury. im nervous i'll have to do this without my mom being there with me all the time like at night i wonder if she can be with me. well if you get any info please tell me, BYE!!!!!

THE 25th

SO I FOUND OUT THAT ON THE 25TH I WILL FIND OUT WHEN MY SURGEURY IS SO I KINDA HAVE BUTTERFLIES IN MY STOMACH SO IM NOT VERY SCARED BUT I AM VERY NERVOUS.BUT HEARING ABOUT THE KIDS WHO DO HAVE BRAIN SURGEURY MAKES ME FEEL SO MUCH BETTER ABOUT IT SO ALL I WANTED TO SAY WAS WISH ME LUCK CAUSE IT IS ONLY IN 3 DAYS SO WISH ME LUCK PLEASE!

SO WHAT?!!??!!

SO WHAT SURGEURY IS FINE, ANY TYPE OF NF IS FINE,AND MOST IMPORTANT YOU ARE FFFIIINNNEEE!!! WHO REALLY CARES IF WE HAVE NF IT DOESNT MATTER WE ARE THE SAME AS OTHER PEOPLE AND IF THEY DONT LIKE IT THEY CAN STICK THEIR NOSE IN A CATS BEHIND! EEEEWWW!! L.O.L :) SO WHAT DO YOU THINK SHOULD WE TAKE DOWN OPRAH? WELL ALL WE WOULD DO IS MAKE A VIDEO TELLING HER SHE IS WORNG!!! NF IS NOT THE ELEPHANT MAN DESEASE!!