tag:blogger.com,1999:blog-8480283337210326082024-02-07T23:39:47.029-08:00A Child's View into NFNF Baileyhttp://www.blogger.com/profile/11137231685062880807noreply@blogger.comBlogger100125tag:blogger.com,1999:blog-848028333721032608.post-18592144352749105532016-09-29T11:18:00.000-07:002016-09-29T11:18:04.052-07:00Been so long! Hello all :) sorry it's been so long since my last blog. A lot has happened this year.. Our babysitting business has grown a lot.. I got to attend NF camp and made a whole bunch of new friends. And, my uncle passed away.<br />
Camp was a lot of fun, we went white water rafting. And we went to lagoon, rode on the cannibal and lots of other rides! :)<br />
White water rafting was fun too. We were even allowed in the water!(:<br />
We got to do other fun things at camp too; like scavanger hunts, horse riding, high and low ropes and capture the flag.<br />
My favorite is the horses because, they let me ride them by myself. I love riding horses so much. I'd love to learn how to jump hurdles. I can't wait to go again. (:NF Baileyhttp://www.blogger.com/profile/11137231685062880807noreply@blogger.com20tag:blogger.com,1999:blog-848028333721032608.post-92019729691868764402015-05-09T08:25:00.001-07:002015-05-09T08:25:29.828-07:00Well. Guess what?<p dir="ltr">Today marks the day of something special. <br>
About three weeks ago, I started the low carb diet with my mother, Kristi.<br>
I have been doing VERY well. And I'm extremely happy with my progress.  I will not put my weight on the blog because I have alot of issues being self concious about it. But I will say that today marks the day I've lost 15 pounds. :)<br>
I'm adding a before and after pic.  Please no bad comments. </p>
<div class="separator" style="clear: both; text-align: center;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5uJuZssHlg6s3JDAayJslxUn24njA2-195R3lOOf81hCLouyJg9aNjvV0HOoBxbSo6-pphWAY8ZI46OJ4C5CvhB6FrERQxhRNfcw2QvPDS546jfybbTSQxzNGYlQiGMuH0iI0qhhbVz_v/s1600/ec49a42678cbed518bedfa0688e21dba34ef269913b7a3a52319c2a7d933c2f8_1.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5uJuZssHlg6s3JDAayJslxUn24njA2-195R3lOOf81hCLouyJg9aNjvV0HOoBxbSo6-pphWAY8ZI46OJ4C5CvhB6FrERQxhRNfcw2QvPDS546jfybbTSQxzNGYlQiGMuH0iI0qhhbVz_v/s640/ec49a42678cbed518bedfa0688e21dba34ef269913b7a3a52319c2a7d933c2f8_1.jpg"> </a> </div>NF Baileyhttp://www.blogger.com/profile/11137231685062880807noreply@blogger.com7tag:blogger.com,1999:blog-848028333721032608.post-58737870534579131042015-03-11T07:38:00.001-07:002015-03-11T07:38:12.733-07:00HELLO :D Hey everyone. Sorry about my absence. Been going to alot of babysitting jobs. And by the time I get back, I am wiped out!<br />
I've been trying to create a children's book series. AND it's going GREAT. I have the first one all finished. Now I am working hard on the next one. :) they are very colorful and have a ton of detail put into them. I am very excited to hopefully get them published.NF Baileyhttp://www.blogger.com/profile/11137231685062880807noreply@blogger.com6tag:blogger.com,1999:blog-848028333721032608.post-67365070167860814722014-12-08T07:51:00.002-08:002014-12-08T07:51:29.214-08:00hello :)Here I am again. And I finally have my first volunteer gig at FRIENDS set up! :) I get to help with stuff like decorations and set up. I'm very excited. And I really hope that they ask for me again. Other than that. Everything is going really well. I'm gonna be 19 soon! :) I'm really excited. I love this time of the year so much!<br /><br /><br />The cold keeps me from outside.<br />
But the warmth and love surrounds me inside.<br />
I smell the ham cooking in all of it's honey glazed glory.<br />
I taste the hot chocolate, not too hot, not too cold.<br />
The warm, tick chocolate runs past my lips and falls over my tongue.<br />
The sweet taste, and bits of mint and marshmallows mix with the rich chocolate.<br />
I feel it warm my body as it runs down my throat.<br />
I smell the Christmas tree and imagine how nature created each and every needle.<br />
Together they form a perfect tree.<br />
But apart, they are only needles.<br />
I love this time of the year.<br />
~Bailey ArcherNF Baileyhttp://www.blogger.com/profile/11137231685062880807noreply@blogger.com1tag:blogger.com,1999:blog-848028333721032608.post-71947856003675790012014-11-21T07:38:00.002-08:002014-11-21T07:38:21.164-08:00Is it too soon?Ok... So I've noticed CHRISTMAS trees already up. My neighbor lives right across from us.. and through the kitchen window I can see a great big Christmas tree! Isn't it too early?<br />
<br />
Anyway. I've started to write children's books. They have very cute drawing in them too. Maybe once it's all ready, I can link you to where to buy it.<br />
<br />
Life has been pretty good here at home. I do MOPS every time that I can. And the place I volunteered at is getting my paperwork together so I can get started. And I've been having LOTS of babysitting jobs as well (:<br />
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Have a good day everyone. And I'll try to write more often. :-*<br />
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<u><b><i><span style="color: #073763;">TTFN</span></i></b></u> :)NF Baileyhttp://www.blogger.com/profile/11137231685062880807noreply@blogger.com12tag:blogger.com,1999:blog-848028333721032608.post-12504005830758531382014-11-18T09:00:00.001-08:002014-11-18T09:00:36.067-08:00I'm back :)Hey everyone. Sorry for not posting as much as I used to. I've been really busy.<br />
Things are going okay now. I'm finished with school. My last MRI went great. I AM STABLE!<br />
Now they only want to see me ONCE every year!<br />
I still have lots of back pain. And I am currently doing a bunch of exercises to help with it.<br />
Alot of good has happened since my last post. But also, alot of bad has happened too. I broke up with my fiance. This was a sad moment.. but it also was a great relief. No one wants to be stuck with someone who treats them bad everyday. I also let go of almost all of my close friends when I broke up with him. His family is very persuasive. And made all my friends on HIS side. My "best friend" decided to go ahead and date him....this was the girl that " I didn't need to worry about".<br />
So. i decided enough was enough. I told her that it wasn't right what she did. And told her I didn't think I could trust her again. So I stopped being her friend. My only other best friend left told me that I would never succeed in life.. That ALL I could do was FAIL. But I proved them ALL wrong. I'm moving on. I'm making better choices. And I'm accomplishing my dreams of helping special needs people. (:<br />
I'm doing what everyone said I couldn't . And I couldn't be prouder of myself.<br />
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<br />NF Baileyhttp://www.blogger.com/profile/11137231685062880807noreply@blogger.com2tag:blogger.com,1999:blog-848028333721032608.post-91014605372746463042013-05-13T10:10:00.000-07:002013-05-13T10:10:49.549-07:00MRI time<div class="separator" style="clear: both; text-align: center;">
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Fergus helping Bailey to feel better.....Thank you to the Children's Hospital for allowing her doggie to come with her today!! Fergus has truly helped keep Bailey calm.</div>
<br />Unknownnoreply@blogger.com4tag:blogger.com,1999:blog-848028333721032608.post-14434567692190241062013-04-29T18:55:00.002-07:002013-04-29T18:55:36.528-07:00My doggie :)My dog has been sooo great! He is a very good boy :) and so sweet. I was supposed to teach him TWO tricks before his graduation. I taught him how to shake, and how to 'leap' over a broom....and my siblings..<br />
He's gonna do so great :) one of the things he failed at was going into public places. But his trainer came with me to petco...and she said if he acted the way he did with me when he was being tested he would've passed...so we'll see what happens :)NF Baileyhttp://www.blogger.com/profile/11137231685062880807noreply@blogger.com1tag:blogger.com,1999:blog-848028333721032608.post-75820359911001789992013-03-13T11:23:00.000-07:002013-03-13T11:23:08.063-07:00<div style="text-align: center;">
Sometimes I get scared of what could be-</div>
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I worry about the tumors and how they affect me.</div>
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But no matter how sad or scared I get-</div>
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I smile always and never quit!</div>
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-Kristi Hopkins</div>
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THRIVE ON!</div>
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<br />Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-848028333721032608.post-50841550322342611752013-03-10T16:23:00.000-07:002013-03-13T11:14:27.901-07:00Therapy Dog!!<div style="text-align: center;">
:D Im getting a therapy dog!! This dog will help me when im sad... or need someone to be there.. this dog will get an adult to help me if needed. And help me with my balance. His name is Fergus. He is about 1- 1&1/2 years old. We will be training him over the next couple weeks...Then he will be MINE!! </div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgdZhwpf6MekVVoxThRP7GKYd3Kf5hdS4uD7VyBhxz-mbtEhKAZ7fLBJLIeoSQw1CkgsNGZ1tYPAB9PJQIbv6Y8XQUlhexkVKCTTSR2t5GYjD8zR02R5iOxfb0jJbAfuGh5xzrqYmCcgtIt/s1600/fergus.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgdZhwpf6MekVVoxThRP7GKYd3Kf5hdS4uD7VyBhxz-mbtEhKAZ7fLBJLIeoSQw1CkgsNGZ1tYPAB9PJQIbv6Y8XQUlhexkVKCTTSR2t5GYjD8zR02R5iOxfb0jJbAfuGh5xzrqYmCcgtIt/s1600/fergus.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="180" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgdZhwpf6MekVVoxThRP7GKYd3Kf5hdS4uD7VyBhxz-mbtEhKAZ7fLBJLIeoSQw1CkgsNGZ1tYPAB9PJQIbv6Y8XQUlhexkVKCTTSR2t5GYjD8zR02R5iOxfb0jJbAfuGh5xzrqYmCcgtIt/s320/fergus.jpg" width="320" /></a></div>
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgdZhwpf6MekVVoxThRP7GKYd3Kf5hdS4uD7VyBhxz-mbtEhKAZ7fLBJLIeoSQw1CkgsNGZ1tYPAB9PJQIbv6Y8XQUlhexkVKCTTSR2t5GYjD8zR02R5iOxfb0jJbAfuGh5xzrqYmCcgtIt/s1600/fergus.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><br /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgdZhwpf6MekVVoxThRP7GKYd3Kf5hdS4uD7VyBhxz-mbtEhKAZ7fLBJLIeoSQw1CkgsNGZ1tYPAB9PJQIbv6Y8XQUlhexkVKCTTSR2t5GYjD8zR02R5iOxfb0jJbAfuGh5xzrqYmCcgtIt/s1600/fergus.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><br /></a>BIG THANK YOU to Freedom Service Dogs!!!!<br />
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<br />NF Baileyhttp://www.blogger.com/profile/11137231685062880807noreply@blogger.com1tag:blogger.com,1999:blog-848028333721032608.post-37244897222629638362013-02-13T19:34:00.001-08:002013-02-13T19:34:48.339-08:00BI- PAP on top of everything else. i have to now use, a bi-pap.<br />
i hate this so much<br />
i feel like i cant breathe when i have it on...the sight of it makes me wanna cry.<br />
heres a poem. By Bailey Archer:<br />
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<div class="MsoNormal" style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 13px; margin: 0in 0in 0pt;">
<b><u><span style="font-size: small;"><span style="font-family: Times New Roman;">Where Am I ?</span></span></u></b></div>
<div class="MsoNormal" style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 13px; margin: 0in 0in 0pt;">
<span style="font-family: Times New Roman; font-size: small;">The world is spinning.</span></div>
<div class="MsoNormal" style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 13px; margin: 0in 0in 0pt;">
<span style="font-family: Times New Roman; font-size: small;">It feels as though gravity is pressing down on me with the heavy weight of the earth.</span></div>
<div class="MsoNormal" style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 13px; margin: 0in 0in 0pt;">
<span style="font-family: Times New Roman; font-size: small;">Where am I?</span></div>
<div class="MsoNormal" style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 13px; margin: 0in 0in 0pt;">
<span style="font-family: Times New Roman; font-size: small;">A cold,</span></div>
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<span style="font-family: Times New Roman; font-size: small;">Unforgiving place.</span></div>
<div class="MsoNormal" style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 13px; margin: 0in 0in 0pt;">
<span style="font-family: Times New Roman; font-size: small;">A place where the light never goes.</span></div>
<div class="MsoNormal" style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 13px; margin: 0in 0in 0pt;">
<span style="font-family: Times New Roman; font-size: small;">A child’s nightmare.</span></div>
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<span style="font-family: Times New Roman; font-size: small;">I’m running,</span></div>
<div class="MsoNormal" style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 13px; margin: 0in 0in 0pt;">
<span style="font-family: Times New Roman; font-size: small;">From what I don’t know.</span></div>
<div class="MsoNormal" style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 13px; margin: 0in 0in 0pt;">
<span style="font-family: Times New Roman; font-size: small;">I’m running from what I’m afraid to be.</span></div>
<div class="MsoNormal" style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 13px; margin: 0in 0in 0pt;">
<span style="font-family: Times New Roman; font-size: small;">I’m running from the things people want me to be.</span></div>
<div class="MsoNormal" style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 13px; margin: 0in 0in 0pt;">
<span style="font-family: Times New Roman; font-size: small;">Twisting and spinning,</span></div>
<div class="MsoNormal" style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 13px; margin: 0in 0in 0pt;">
<span style="font-family: Times New Roman; font-size: small;">Having trouble,</span></div>
<div class="MsoNormal" style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 13px; margin: 0in 0in 0pt;">
<span style="font-family: Times New Roman; font-size: small;">Can’t quite see where I am heading yet.</span></div>
<div class="MsoNormal" style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 13px; margin: 0in 0in 0pt;">
<span style="font-family: Times New Roman; font-size: small;">I see a light,</span></div>
<div class="MsoNormal" style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 13px; margin: 0in 0in 0pt;">
<span style="font-family: Times New Roman; font-size: small;">A light at the end of the long stretching road.</span></div>
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<span style="font-family: Times New Roman; font-size: small;">One brighter and more pure then I have ever seen before.</span></div>
<div class="MsoNormal" style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 13px; margin: 0in 0in 0pt;">
<span style="font-family: Times New Roman; font-size: small;">I hurl myself out of the pit of who I’m not.</span></div>
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<span style="font-family: Times New Roman; font-size: small;">I pull myself up.</span></div>
<div class="MsoNormal" style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 13px; margin: 0in 0in 0pt;">
<span style="font-family: Times New Roman; font-size: small;">I run wide eyed,</span></div>
<div class="MsoNormal" style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 13px; margin: 0in 0in 0pt;">
<span style="font-family: Times New Roman; font-size: small;">Into the mysterious magic of the bright light.</span></div>
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<span style="font-family: Times New Roman; font-size: small;">I am here.</span></div>
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<span style="font-family: Times New Roman; font-size: small;">The place I wanted to be. The place I longed to be.</span></div>
NF Baileyhttp://www.blogger.com/profile/11137231685062880807noreply@blogger.com2tag:blogger.com,1999:blog-848028333721032608.post-62200114358820913912013-01-11T18:17:00.001-08:002013-01-11T19:18:13.815-08:00MY Bracelets <div class="separator" style="clear: both; text-align: center;">
<span style="text-align: start;"> I will be making and selling these very special and very beautiful bracelets for special order, and special color. i can make them say 'almost' anything. But they gotta be short words. Or one long word. The pictures are an example. The bracelets will be $10.00 (free shipping in U.S. only.) I'm doing this to raise money for my family, and help out. CLICK the donate button----->></span></div>
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<span style="text-align: start;">and tell me how many you want, what colors, and what size. </span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgi1WcJySv4BtbkACIhaUdH8Q1B7CJ1XRsuLGnzlmToEx0ZRd8Wmr-5Jv6Gjh-B045mhskEHwL9YIAJVaYaxCq5SfGDGvPFdhyphenhyphenH5s-QsbaB2LNu4th2WY2gc_Hp6oJWDuXVpxlLVCij0wS1/s1600/2013-01-11_18-58-55_115.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="179" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgi1WcJySv4BtbkACIhaUdH8Q1B7CJ1XRsuLGnzlmToEx0ZRd8Wmr-5Jv6Gjh-B045mhskEHwL9YIAJVaYaxCq5SfGDGvPFdhyphenhyphenH5s-QsbaB2LNu4th2WY2gc_Hp6oJWDuXVpxlLVCij0wS1/s320/2013-01-11_18-58-55_115.jpg" width="320" /></a></div>
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<br />NF Baileyhttp://www.blogger.com/profile/11137231685062880807noreply@blogger.com5tag:blogger.com,1999:blog-848028333721032608.post-4993906560131843732012-12-18T17:16:00.001-08:002012-12-18T17:16:34.776-08:00I Presented My Video Today! So, today I presented my video.<br />The class was kinda unsure about everything, but they all listened. (:<br />It was kinda cool to get my story out there.<br />After the video i started getting so many compliments... I'm even in another group (I'm in three huge groups now) They called it "the pretty peeps group"...just some popular kids..haha...<br />But, if my besty, Jessie wasn't there while I presented to my own class...I'm pretty sure I would've stayed quiet...(: love you Jessie! Today was just a REALLY greaet day! I had hardly any work to do, Jessie got me this realllllyyyy yummy starbucks iced coffee with chocolate chunks and chocolate syrup in it, I got to present to my class, AND i got to see my gentleman caller! hahaha (:NF Baileyhttp://www.blogger.com/profile/11137231685062880807noreply@blogger.com3tag:blogger.com,1999:blog-848028333721032608.post-85020377827297979512012-12-17T19:06:00.001-08:002012-12-17T19:06:49.494-08:00My Video<div style="text-align: center;">
<iframe allowfullscreen="allowfullscreen" frameborder="0" height="315" src="http://www.youtube.com/embed/xwUdEclAKzk" width="420"></iframe></div>
Unknownnoreply@blogger.com2tag:blogger.com,1999:blog-848028333721032608.post-22108637480234514382012-11-13T15:38:00.000-08:002012-11-13T15:41:44.136-08:00Meeting With Dr. Handler<div class="separator" style="clear: both; text-align: center;">
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So Mom and I met with my Neurosurgeon to talk about my tumors and if surgery was the best thing. Turns out....It's not the best thing. I felt sort of relieved when I heard this...But then I was like.."Then what are we going to do?" More waiting is what we are going to do.</div>
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Im ok with waiting. It doesnt mean that I have to do nothing. I'll just take things as they come and keep a positive attitude and have FUN!</div>
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<br />Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-848028333721032608.post-92180471741579237312012-11-06T13:45:00.001-08:002012-11-06T13:45:52.365-08:00Nov MRI<div class="separator" style="clear: both; text-align: center;">
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<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-848028333721032608.post-89773905000408473792012-09-06T17:25:00.000-07:002012-09-06T17:25:24.219-07:00DEGENERATIVE DISK DISEASEi dont know much about <span style="background-color: #f9f9f9; color: #222222; font-family: Arial, sans-serif; font-size: 13px; line-height: 18.200000762939453px;">DEGENERATIVE DISK DISEASE but i do know that it hurts. It hurts everyday from the moment i wake up to the moment i go to sleep.</span><br />
<span style="background-color: #f9f9f9; color: #222222; font-family: Arial, sans-serif; font-size: 13px; line-height: 18.200000762939453px;">its something wrong with my back that makes the cushy parts in between each bone on my spine start to dissapear...so my bones are basically touching..</span><br />
<span style="background-color: #f9f9f9; color: #222222; font-family: Arial, sans-serif; font-size: 13px; line-height: 18.200000762939453px;">school is going alright though everything is pretty easy except for math. its just new stuff to me, its hard to get used to. Drama class is my favorite though. well i have run out of things to say. goodbye for now</span><br />
<span style="background-color: #f9f9f9; color: #222222; font-family: Arial, sans-serif; font-size: 13px; line-height: 18.200000762939453px;"><br /></span>NF Baileyhttp://www.blogger.com/profile/11137231685062880807noreply@blogger.com0tag:blogger.com,1999:blog-848028333721032608.post-29265246135434114022012-06-18T12:15:00.000-07:002012-06-18T12:15:12.845-07:00CAMP WAPIYAPIcamp was alot of fun!<br />
i got to help all the other campers have fun. The water fight we had was one of my favorite parts.....near the end of it a big fire truck pulled up and the firefighter took out his hose and started squirting everyone!<br />
another favorite part was when i went to a lake and sat on a rock....i was minding my own buisness when three chipmunks came up to me. so i fed them and thats when they started jumping on my lap trying to grab the food out of my hands....one even went inside my backpack!<br />
i made alot of paintings at camp to raise money. one of them is in the camp art auction.<br />
i cant wait to hear how much someone bid on it!NF Baileyhttp://www.blogger.com/profile/11137231685062880807noreply@blogger.com4tag:blogger.com,1999:blog-848028333721032608.post-41187968035391441772012-05-28T17:21:00.000-07:002012-05-28T17:21:18.454-07:00BAD NEWS....so we found out chemo isnt working! im just mad that they are making me wait 3 more months till they do anything about it....what do i do in the mean time? well of course i worry ALOT.<br />
i hate it when docs come in and say "oh the tumor grew" like its no big deal to them at all.<br />
im going to camp waypiapi soon....im excited for that :)NF Baileyhttp://www.blogger.com/profile/11137231685062880807noreply@blogger.com9tag:blogger.com,1999:blog-848028333721032608.post-67481494814034134602012-04-14T10:09:00.003-07:002012-04-14T15:10:03.119-07:00NEW STUFF!!<span style="font-size: 100%;"> so i started this new chemotherapy called afinitor.</span><br />
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the reactions to it are: dizzy all the time!, nausea, runny nose, i can get itchy too (i've read this on the package....lol)</div>
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OH AND SOMETHING GREAT HAS HAPPENED! i got a boyfriend! :D</div>
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<span style="font-size: 100%;">this guy though is everything i have ever wanted from a guy. hes caring, hes kind, he loves me for me....this guy isn't </span>judgmental at all, this guy always talks to me before he says or does anything,</div>
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<span style="font-size: 100%;">this guy is the most wonderful thing thats ever happened to me,this guy is my best friend, and his guy is also......my boyfriend! </span></div>
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<span style="font-size: 100%;"> <3 u forever John Meister</span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgBA_e6UvDGIWTTJ2lF-alMms-SClCnzxtqA95QxJ4yyIzbDuuPwQUmO_a0Cf00FTYyVEgJNZe63lkXjA7S2SkJ1DPCFGU6FT-K81ABUlEkUlRBoiYAmubnC0jRB6tmZnOFqmjSd7wnsDY/s1600/P1030929.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgBA_e6UvDGIWTTJ2lF-alMms-SClCnzxtqA95QxJ4yyIzbDuuPwQUmO_a0Cf00FTYyVEgJNZe63lkXjA7S2SkJ1DPCFGU6FT-K81ABUlEkUlRBoiYAmubnC0jRB6tmZnOFqmjSd7wnsDY/s320/P1030929.JPG" width="259" /></a></div>
<br /></div>NF Baileyhttp://www.blogger.com/profile/11137231685062880807noreply@blogger.com5tag:blogger.com,1999:blog-848028333721032608.post-65379757841809342512012-03-02T07:28:00.002-08:002012-03-02T07:36:46.281-08:00MORE CHEMO???????<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQQwMMAFEGA9us4PNY3K0TaTn594AYtgvfhWzmRoUdi9-EUj8nJQ-6Zu84W_2-hAEbfH34iHQB9v0BUqrQ8ZsX6mIW9OMoBhfs_50q5keMKEO6Boe41_6kM53fr7YCiQljfDus_nF1TNY9/s1600/badbab.jpg" style="font-family: Georgia, serif; font-size: 100%; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal; "><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 220px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQQwMMAFEGA9us4PNY3K0TaTn594AYtgvfhWzmRoUdi9-EUj8nJQ-6Zu84W_2-hAEbfH34iHQB9v0BUqrQ8ZsX6mIW9OMoBhfs_50q5keMKEO6Boe41_6kM53fr7YCiQljfDus_nF1TNY9/s320/badbab.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5715324099563543762" /></a><span ><span style="font-size: 100%;">I went to the hospital on Monday and then on Tuesday. I was SUPER dizzy and just didn't feel right. So I was hooked up to IV to get fluid and they took a lot of blood. I always hate that part.</span></span><div style="font-family: Georgia, serif; font-size: 100%; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal; ">The tests on Tuesday were exhausting!</div><div style="font-family: Georgia, serif; font-size: 100%; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal; "><br /></div><div style="font-family: Georgia, serif; font-size: 100%; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal; ">I had my eyes checked, hearing checked, hormones checked...SOOOO many doctors!</div><div style="font-family: Georgia, serif; font-size: 100%; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal; "><br /></div><div style="font-family: Georgia, serif; font-size: 100%; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal; ">Dr. Rush came in and talked about taking out my port. The stinkin port doesn't work anyways, so I was happy about that part...I wasn't happy to hear that I NOW have to do MORE CHEMO!</div><div style="font-family: Georgia, serif; font-size: 100%; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal; "><br /></div><div style="font-family: Georgia, serif; font-size: 100%; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal; ">Since my tumor hasn't shrunk, I will be taking an chemo that comes in a pill. Im glad I wont have to be poked every single time, but MORE CHEMO???? :(</div><div style="font-family: Georgia, serif; font-size: 100%; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal; "><br /></div><div style="font-family: Georgia, serif; font-size: 100%; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal; ">I know that doing chemo is what I have to do, even if it stinks. I will do whatever it takes to show this NF who is BOSS!</div><div style="font-family: Georgia, serif; font-size: 100%; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal; "><br /></div><div style="font-family: Georgia, serif; font-size: 100%; font-style: normal; font-variant: normal; font-weight: normal; line-height: normal; ">Life's Tough...But You Have To Prove That You're Tougher!</div>NF Baileyhttp://www.blogger.com/profile/11137231685062880807noreply@blogger.com4tag:blogger.com,1999:blog-848028333721032608.post-45167555512950035512012-03-01T16:16:00.002-08:002012-03-01T16:19:05.492-08:00OMG....A RAT!!<span class="Apple-tab-span" style="white-space:pre"> </span>omg so i saw this white rat....with long whiskers, and pink eyes, with snow white hair.......<div><br /></div><div><br /></div><div><br /></div><div>sitting there.....</div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div>in a cage.......</div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div>and it was...........</div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div>A SURPRIZE PRESENT FOR ME!! :D</div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div>im thinking of naming it poptart......got any good rat names??</div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div>shes really curios, and very sweet!</div>NF Baileyhttp://www.blogger.com/profile/11137231685062880807noreply@blogger.com0tag:blogger.com,1999:blog-848028333721032608.post-79304039362989916712012-02-26T10:26:00.002-08:002012-02-26T10:26:59.632-08:00Neurofibromatosis in the NEWS!<br />
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Broomfield mom-daughter duo a model of positivity</h1>
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They hope their way of dealing with incurable condition will help others cope</div>
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<a class="articleByline" href="mailto:rubinoj@broomfieldenterprise.com?subject=Broomfield%20Enterprise:" style="color: black; margin-top: 7px; text-decoration: none;"><span class="author vcard" style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><span class="fn" style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><strong>By Joe Rubino</strong> Enterprise Staff Writer</span></span><span class="source-org vcard" style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"></span></a></div>
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Posted: 02/26/2012 12:00:00 AM MST</div>
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REFUSING TO BE NEGATIVE ABOUT NF: ?Bailey Hopkins, 16, and mom, Kristi, hug at their Broomfield home on Thursday. Both focus on being positive in the face of Neurofibromatosis, an as-of-yet incurable condition. Both have blogs they hope help others cope with the condition, too. ( David R Jennings )</div>
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<strong>FOLLOW THEM </strong><br />To follow Kristi and Bailey Hopkins and their mission of thriving with Neurofibromatosis visit their blogs:<div style="color: #222222; margin-bottom: 10px; margin-top: 10px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">
<strong>Kristi's blog</strong> --<a href="http://www.thrivingwithneurofibromatosis.blogspot.com/" style="color: #0065a4; text-decoration: none;">http://thrivingwithneurofibromatosis.blogspot.com</a></div>
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<strong>Bailey's blog</strong> --<a href="http://www.achildsviewintonf.blogspot.com/" style="color: #0065a4; text-decoration: none;">http://achildsviewintonf.blogspot.com</a></div>
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To learn more about neurofibromatosis and how it is being researched and treated, visit <a href="http://www.ctf.org/" style="color: #0065a4; text-decoration: none;">http://ctf.org</a>.</div>
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Neurofibromatosis is a hard word to say, and for medical professionals just as hard to understand. The as-of-yet incurable condition, passed along genetically, causes tumors to grow on nerve tissue throughout the body, primarily producing skin and bone abnormalities. While some people with the condition can live almost unaffected, depending on the size and location of the tumors, others can experience all kinds of complications, including hearing loss and learning disabilities.<div style="color: #222222; margin-bottom: 10px; margin-top: 10px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">
Broomfield resident Kristi Hopkins and her daughter, Bailey, know all about neurofibromatosis, or NF. The duo have been living with the condition their whole lives -- though they were just diagnosed in the past four years -- and have been confronting it head on for the past two years. In their view, a view all eight members of the Hopkins family embrace, the best medicine for the condition is lots and lots of positivity.</div>
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Kristi Hopkins first came in contact with NF about 35 years ago, when her brother, Mike, was diagnosed. Her mother carried the condition, which occurs in about one in every 3,000 births, and passed it along to Mike and -- though she wasn't diagnosed until 2007 -- Kristi.</div>
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Kristi Hopkins said the guilt of passing the condition on to her kids caused her mother to become depressed and hide from it.</div>
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"My mom ignored it and avoided it," Kristi Hopkins said. "When (I was diagnosed), of course, I wanted to deny it. I chose to at first be angry and afraid, but after (my youngest daughter) Brooklyn was born (three years ago), I realized my anger was getting me nowhere."</div>
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The Hopkins family knows a thing or two about the power of positive thinking. Dad Rich Hopkins is professional speaker and speech coach, who competed in last year's World Championships of Public Speaking. Rich Hopkins, who had his left foot amputated in 2006 because of complications from a birth defect, delivered a speech about living a positive life by living in your most positive moments and rejecting the negative moments, a lesson he passed along to his wife and daughter.</div>
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Three years ago, Kristi Hopkins was writing her feelings about her condition in an admittedly negative online journal when her husband suggested something that changed her life.</div>
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"He said, 'What if you did something positive for people that inspired them?'" Kristi Hopkins recalled. "That day I started 'Thriving With NF.'"</div>
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"Thriving with Neurofibromatosis," Kristi's blog, has been going strong for almost three years, she said, and is followed by more than 200 people. The blog, and self-published book by the same name, are dedicated to confronting NF and facing the challenges it presents head-on.</div>
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"I feel like if someone is recently diagnosed with NF and they Google it and somehow they find me, (my blog) can give them hope," Kristi Hopkins said. "Because I've gone on and gotten married and have a family, and a lot of times people who are recently diagnosed lose hope."</div>
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Mom shares her desire to help the NF community with daughter, Bailey, who was diagnosed at age 14. Bailey's condition has caused several tumors to appear in her head. One tumor puts pressure on her right ear and makes it hard for her to hear. Another tumor is near the center of her brain. While it is non-cancerous like a vast majority of NF tumors, it has been growing. Its growth lead doctors at Denver's Children's Hospital two years ago to recommend chemotherapy to prevent serious complications, and Bailey has been reporting for weekly treatments four out of every six weeks since.</div>
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. "I'm always nervous before receiving chemotherapy and relived after," the Standley Lake High School freshman said this week. "It's like, 'Alright, I can go home and play video games.'"</div>
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Despite a natural fearful initial reaction, Kristi Hopkins said her daughter has been a trooper, taking her treatment in stride and being strong for her family.</div>
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"She's so inspirational," Kristi Hopkins said. "She put her hand on my shoulder and said, 'Mom its going to be OK,' and she's had that attitude the entire time."</div>
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It was when she began receiving chemotherapy that Bailey Hopkins started her blog, "A Child's View into NF," which she has been updating for 1 ½ years. The blog, like her mother's, is anything but negative. It shows pictures of Bailey making prank phone calls while waiting to receive chemotherapy and posts discuss the 16-year-old's interests and hobbies -- including playing video games and drawing -- as well as how she deals with NF.</div>
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"I hope what comes from my blog is that I can help others and help them get through things with NF and help them find new hope," Bailey said. "I guess it also helps me express myself."</div>
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Kristi Hopkins said that in spite of her life with NF and its effects on her family, she feels blessed that she has found a way to turn it into something positive for others with the condition. She said she feels like her blog and her daughter's blog provide them with a purpose: Spread postivity.</div>
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"It's great medicine, because there is a lot of downside to living with NF," Kristi Hopkins said. "If you act like you feel bad you will feel bad, but if you act like you feel good even if you feel bad, it's going to make all the difference."</div>
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</div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-848028333721032608.post-61753430001011977992012-02-25T09:57:00.002-08:002012-02-25T10:07:16.758-08:00OH WOW!<span class="Apple-tab-span" style="white-space:pre"> </span>so thursday morning i stayed home from school, and then these news guys show up.<div>and they stay for about an hour. just asking me how i felt about having NF. And how i felt going through chemo therapy.</div><div>i think i did very well at this interveiw.</div><div>i told them i keep this blog to help people (mostly teens) going through the same thing...and if they cant find help from family...im always here :).</div><div>but i also told them how my blog got to be more then that.</div><div>unexpectedly it reached just about EVERYONE.</div><div>i told them how Dr. Laura Schlesinger talked about my blog on her radio station!!</div><div>i told them that my hobbies are swimming and drawing anime.... u might get to see it im not sure yet....ask my mom if you wanna see it.</div><div>but...something i've been wanting to get relized is my new saying</div><div>"life is tough, but you gotta prove you're tougher"</div>NF Baileyhttp://www.blogger.com/profile/11137231685062880807noreply@blogger.com5tag:blogger.com,1999:blog-848028333721032608.post-68793543898682077362012-02-06T17:39:00.000-08:002012-02-06T17:39:06.827-08:00Prank Calls!!<div class="separator" style="clear: both; text-align: center;">
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Making Prank Calls while @ Chemo!!!</div>Unknownnoreply@blogger.com0