24th

on the 24th of this month i will be going to camp not just any camp NF camp and there is kids who already want to be my friends im so excited!!!!But one thing im not to excited for is going without my mom to camp and on the plane. But there will be a guy holding a sign that has my name on it and i follow him i wonder what happens after that? do i go into a limo?do i go into a stinky tub of a bus? what happens??!!im freaked out by this if you know anything please tell me in the comment box bellow. I could really use the help. thanks for being so kind to me.

cushings syndrome and NF

WHEN I WENT TO THE DOCTERS ON WEDDNESDAY I FOUND OUT THAT I DO NOT HAVE ANY SPINE TUMORS AT ALL BUT THEY DID SEE THAT MY BRAIN TUMOR GREW SINCE MY LAST MRI. ANYWAY WHEN WE GOT HOME MY MOM LOOKED THROUGH THE PAPERS AND FOUND OUT THAT I HAVE A SYNDROME CALLED CUSHINGS DESEISE IT'S WHERE WE HAVE A ROUN CHUBBY FACE,A HUNCHED BACK.AND SKINNY ARMS AND LEGS IM STILL TRYING TO FIND MORE ABOUT IT I'LL TELL YOU WHEN I DO. BBBBBBBBBBBBBBBBBBBBBBBBYYYYYYYYYYYEEEEEE

hey ya guys!!!!! :) :)

hi guys on the 25th i found out that i will be having surgeury in augest when i move so that im not so stressed out. they said that i would have to stay in the hospital for a week. they also said i'll go deaf in my right ear after the surgeury. im nervous i'll have to do this without my mom being there with me all the time like at night i wonder if she can be with me. well if you get any info please tell me, BYE!!!!!

THE 25th

SO I FOUND OUT THAT ON THE 25TH I WILL FIND OUT WHEN MY SURGEURY IS SO I KINDA HAVE BUTTERFLIES IN MY STOMACH SO IM NOT VERY SCARED BUT I AM VERY NERVOUS.BUT HEARING ABOUT THE KIDS WHO DO HAVE BRAIN SURGEURY MAKES ME FEEL SO MUCH BETTER ABOUT IT SO ALL I WANTED TO SAY WAS WISH ME LUCK CAUSE IT IS ONLY IN 3 DAYS SO WISH ME LUCK PLEASE!

SO WHAT?!!??!!

SO WHAT SURGEURY IS FINE, ANY TYPE OF NF IS FINE,AND MOST IMPORTANT YOU ARE FFFIIINNNEEE!!! WHO REALLY CARES IF WE HAVE NF IT DOESNT MATTER WE ARE THE SAME AS OTHER PEOPLE AND IF THEY DONT LIKE IT THEY CAN STICK THEIR NOSE IN A CATS BEHIND! EEEEWWW!! L.O.L :) SO WHAT DO YOU THINK SHOULD WE TAKE DOWN OPRAH? WELL ALL WE WOULD DO IS MAKE A VIDEO TELLING HER SHE IS WORNG!!! NF IS NOT THE ELEPHANT MAN DESEASE!!

nero

on Friday afternoon i had found out that i might not get the surgery i wanted i might have to have the one i feared of having the one where they cut open my skull when i heard this i went ballistic i couldn't stop crying. when i was told about this i was so scared. i was thinking, whst's going to happen to me, i was thinking will my mom at least visit me everyday, i was thinking about them taking off my skull, i was thinking what if something goes horribly wrong, i was thinking all these scary things then, today that feeling is gone i know that what ever happens it's because GOD wanted it to happen

my surgury

TWO DAYS AGO I FOUND OUT THAT THE TUMOR IN MY BRAIN CAN HAVE A MAJOR AFFECT ON ME AND THEY MIGHT HAVE TO DO SURGERY OR THEY'LL HAVE ME PUT THROUGH A DIFFERENT TYPE OF SURGERY WHICH IS TARGETING A LASER AT MY TUMOR AND SHRINKING IT UNTIL IT DIES AND BREAKS AWAY.THEY WILL HAVE TO KEEP ME OVERNIGHT (HOPE MY MOM IS THERE) STILL I CAN'T WAIT TO GET THIS DONE AND OVER WITH WALK'N DOWN DEATH ROW ISN'T SO HARD ANYMORE AS LONG AS SOMEONE YOU LOVE WHO IS THERE RIGHT BESIDE YOU