Saturday, March 12, 2011

CHEMO

so chemo is going to happen for sure on the 28th of march.......the day spring break starts. first i will go into surgury for half an hour and then they will start chemo immediatly after.i'm worried, and sometimes i want everyday to go by as slow as it can. but i know thst once this happens it'll be for the better. and thanks to everyone who has been supporting me, espeacially christina and stephanie, and most of all, my mom. how they put chemo in me is they put a needle that looks like a butterfly into my port and then i have to stay for like an hour while the medicine drips into me. everyone has their time to worry, but this is not my time.

Thursday, March 10, 2011

BIG GIRLS DON'T CRY

although i'm worried bout my upcoming surgury (port) i know i must push on with life. You can't go through life worrying about what could happen, make the best out of what u have! Yeah i have a tumor, but who gives a care? I sure don't. I have friends and family who care bout me, that's what makes me happy most of all. altough an ipod would be great too. I try to focus on things to make me happy. Like my favorite animals: Lion, tiger, bear (oh my!) , elephant, kangaroo, rabbit, piglet, owl, whinnie the pooh.
or i draw, drawing is great but what i like most is duck tape! the color kind :D .
if that doesn't work i guess we all love chocolate, or ice cream! or- or CANDY!!!!!!!
mmmmmm love the stuff.
i like to excersize too, i'll pull myself up on mokey bars!the kind that spin!
these are some things that help me. what helps u guys? GIVE ME SOME IDEAS!!

Tuesday, March 8, 2011

NOOOOOO!!

One morning 15 yr old bailey wakes up and is ready for a big day. she sees the hearing doctors and they tell her the bad news. Bailey has not been wanting this answer. "Bailey" said the doctor, "you have a new tumor that WILL need chemo therapy." The room starts to spin as Bailey thinks about the future, "52 weeks of chemo" said the doctor. Bailey looks at her mom who now has tears in her eyes. Bailey goes to her mom and says "mom, I will be fine. You don't need to worry."

Sunday, February 27, 2011

HELLO NFers

hello fellow NFers.....have you ever noticed how cool NF can be? HUH.....HUH....HAVE YA...HAVE YA??? well i know i have. if you look at it in the right way......we are kinda lucky. we get to be ourselves. sure people can tell us we are different but we've got to accept that and mold it into confidence Abraham Lincoln was thought as to having NF. he has tumors that you can notice in his pictures. he also wore his beard because he was covering tumors. anyway Lincoln took criticism from a lot of people. but he took hold of it and molded it into advice on how he could be better. he took insults and ignored them. i'm not saying it's easy to ignore or anything...cuz it's not. but i know if we stand together, we can beat the odds. we can stand above gossip, name calling,and the saddness and overwelmingness of NF. i know that together, united as one, we can do anything. a challenge i want EVERYONE to do this upcoming month is, tell FIVE not four, not six, FIVE people about NF and how u live with it. if u don't...........i don't know what i will do....but i'll do something! we. WILL tell the WORLD our story! c(:

Wednesday, February 23, 2011

MRI results.............dun dun DUN!

So toaday,
I went to children's hospital, I had a MRI and they found my brain tumor has slightly grown. They suggested a hearing test before they decide anything, but i know the results will end up being bad. I have noticed change in my hearing, i listened to my mp3 player and noticed when it is only in my right ear it sounds like a electric toy dying because of being in water. I talk on the phone sometimes and i have to switch it to my left ear because i can not hear anything out of my right ear.
They told me something that scared me pretty bad, they told me that if my hearing tests were lower that they'd put me through kemo therapy and see how it goes, and if that doesn't end u shrinking it then i will have to get surgury.
I try to be brave, I do everything I can to make a smile on someone's face. It is hard for a teenager to deal with school stress, homework stress, chore stress, babysitting stress, and what i'm going through. But I will stay stong!

Saturday, February 5, 2011

hey peoples!

hey guys how have you all been?
i have been good...... my MRI on the 24Th of February....we hope nothing bad is going to show up on the results....but we also hope that something would happen to make it so i can get surgery and just get this over with.....you know? so wish me luck! And i am going to go to camp on the second week like i went before....hope my friends can come too!! Elizabeth, Sarah, Maria, Phillip I got a nick name while i was there...it is ducky, I am very excited to go to camp. Please comment, tell me if you know anything about camp...if you are going, or if you know who is going!

Thursday, January 20, 2011

hi

so nothing much has happened, except the fact that my sister got her ears pierced :). and guess what else!!???!! i video taped it,even though the lady said no. i will give you guys the address so you can find it on you tube once we get it uploaded. i also sent in this nominator essay that the counselor gave me to do, and she says that i may have been chosen to be the winner because mine was the best!! i also have an up coming MRI but it gets changed so much, i don't even remember the date.and my mom is going to have me see this counselor, because of bottled up feelings of my real dad. i keep saying i don't need a counselor to tell me whats wrong with me because i already know, I'm sad, i miss my dad very much i don't know if those feelings will ever go away. a counselor is not going to make me feel better about missing my dad. but i also said ii would give her a chance.....what do you guys think i should do??