tag:blogger.com,1999:blog-848028333721032608.post6806233109305300069..comments2024-01-11T02:59:08.886-08:00Comments on A Child's View into NF: HI I'M BAILEY AND I HAVE NF1NF Baileyhttp://www.blogger.com/profile/11137231685062880807noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-848028333721032608.post-65702432631390130542010-02-23T20:20:55.194-08:002010-02-23T20:20:55.194-08:00Hi Bailey - I'm glad I found your blog. My dau...Hi Bailey - I'm glad I found your blog. My daughter, who's 10, has NF1. Like you, she has a sister who doesn't have it. <br /><br />I wanted to let you know about National Doodle Day, which is coming up in May. Celebrities doodle and then they're auctioned off on eBay to raise funds for NF research. I live in Texas and I'm trying to get some local music and film celebrities to donate doodles for the cause. <br /><br />You can find out more about it here: http://www.doodledayusa.org and maybe spread the word (on your blog and elsewhere) so that your friends and family can bid on doodles or ask their friends to do so, and help raise money for research.<br /><br />Hope you're doing well!<br /><br />Take care, <br /><br />C.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-848028333721032608.post-71407363615313042022010-02-17T12:36:00.552-08:002010-02-17T12:36:00.552-08:00I love this! I wish so much I had the strength and...I love this! I wish so much I had the strength and courage to speak up about NF when I was your age. I was in the early 20's when I actually was able to have a discussion about it. Even going to the Neurodoc made me so nervous and upset I couldn't even talk about my own condition. But it's people like you, your awesome mom and so many other NF friends I've made over the past few years that have made me feel so much better about myself, and I am so grateful for it. Stay awesome!Jennifer Goodhttps://www.blogger.com/profile/08567885257853378953noreply@blogger.comtag:blogger.com,1999:blog-848028333721032608.post-24581028814685682662010-02-16T17:09:20.444-08:002010-02-16T17:09:20.444-08:00you guys are awesomeyou guys are awesomeNF Baileyhttps://www.blogger.com/profile/11137231685062880807noreply@blogger.comtag:blogger.com,1999:blog-848028333721032608.post-35622635844613505402010-02-15T20:20:52.972-08:002010-02-15T20:20:52.972-08:00Bailey sweetheart....I am so proud of you! You ma...Bailey sweetheart....I am so proud of you! You make me so happy!Ms. Kissyhttps://www.blogger.com/profile/18208533697775623138noreply@blogger.comtag:blogger.com,1999:blog-848028333721032608.post-48103800235417878562010-02-15T15:38:09.688-08:002010-02-15T15:38:09.688-08:00Great blog!! Stay focused on all things positive ...Great blog!! Stay focused on all things positive and don't ever let anyone get you down:)Anonymoushttps://www.blogger.com/profile/18064902411061389907noreply@blogger.comtag:blogger.com,1999:blog-848028333721032608.post-56483838416529580232010-02-15T14:34:56.331-08:002010-02-15T14:34:56.331-08:00GREAT JOB BAIELY!!! Well written too. My name is c...GREAT JOB BAIELY!!! Well written too. My name is christina and I am 25 with nf1 as well. Me and ur mom are great friends, so anytime you want to talk to let me know!!bsb1222411https://www.blogger.com/profile/09783170348086025022noreply@blogger.comtag:blogger.com,1999:blog-848028333721032608.post-1682753213552660732010-02-15T12:57:50.852-08:002010-02-15T12:57:50.852-08:00AWESOME THAT'S SO COOLAWESOME THAT'S SO COOLNF Baileyhttps://www.blogger.com/profile/11137231685062880807noreply@blogger.comtag:blogger.com,1999:blog-848028333721032608.post-56394385868688683942010-02-15T12:49:00.000-08:002010-02-15T12:49:00.000-08:00hey great blog! well written. I have nf1 myself. ...hey great blog! well written. I have nf1 myself. I did everything people without it did and more. I used to be in air cadets and had loads of fun there.simon northhttps://www.blogger.com/profile/07450197890541332362noreply@blogger.comtag:blogger.com,1999:blog-848028333721032608.post-43144110198258863422010-02-15T12:43:31.388-08:002010-02-15T12:43:31.388-08:00HEY THANKSHEY THANKSNF Baileyhttps://www.blogger.com/profile/11137231685062880807noreply@blogger.comtag:blogger.com,1999:blog-848028333721032608.post-34386462740251361332010-02-15T12:41:40.916-08:002010-02-15T12:41:40.916-08:00hi bailey! my name's sherry. i'm 58 and i ...hi bailey! my name's sherry. i'm 58 and i have NF1. you rock!Sherry Pasquarellohttps://www.blogger.com/profile/06107407102753464356noreply@blogger.comtag:blogger.com,1999:blog-848028333721032608.post-87486393041735168292010-02-15T12:32:33.392-08:002010-02-15T12:32:33.392-08:00HI I'M BAILEY TELL ME HOW YOU LIKED ITHI I'M BAILEY TELL ME HOW YOU LIKED ITNF Baileyhttps://www.blogger.com/profile/11137231685062880807noreply@blogger.com