we are the NFers and nothing can silence us! we are different, you should be proud
Friday, February 26, 2010
Tuesday, February 23, 2010
Hello everyone, i was wondering if you could tell me more about MRI'S see i am going in for my first one ever on the 16th at 3:30 I feel nervous but I will not let fear stand in my way when it knocks at the door I don't answer it. when my mom told me about this i wasn't scared Ijust wanted to know more and was wondering if you guys could give me more info thanks
Friday, February 19, 2010
hi guys sorry I haven't wrote to you in a long time I've been busy thanks for all the great comments you make me feel so much better. when I think about NF it seems like ok so I'm going to have some ups and downs on this , but that's life. A up would be the free trip to Disney world. A down i guess could be bumps but what's the big deal about that?
Monday, February 15, 2010
hi my name is riley and I don't have NF but my Mom;two sisters;and my big brother do.So that is why my little sister rachel got a make a wish.She wished to see princesses and we are going to Disney world.And my mom said we are blessed.A make a wish is a business that gives a child that has NF,cancer ext whatever they want.
Sometimes I get confused about what NF is.So I'm glad I have a mom that explains it to me.So I'm kind of scared when my mom goes on long trips to D.C. but I'm glad when she comes back and tells me all about it.
Hi i'm Bailey i'm fourteen and i have NF one ,
at first i didn't know that I had NF but i soon found out that it doesn't mean you can't do the things normal kids can do, anyway i have three good friends who will not run from me even when i thought they would run when i told them i have NF they understood me and just stayed there by my side and at that point I knew i was special I knew i could do great things one day maybe even write a book like my mom
I know I'm special and i will never give up hope because I;m surrounded by people that love me recently my sister Rachel got a chance to be a make a wish kid and now we are going to Disney world on march22
in conclusion I AM BAILEY AND I HAVE NF ONE AND I'M PROUD!!